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Maggie
A Measles Exposure Story

After being notified that he and his family were exposed to measles, Dr. Tim Jacks signed on to the family’s online CaringBridge journal to vent his frustration.

Dr. Tim Jacks’ 3-year-old daughter Maggie was fighting acute lymphoblastic leukemia (blood cancer) and as a result had a compromised immune system. His 10-month-old son Eli received all his recommended vaccines, but was too young for his first dose of MMR (measles, mumps and rubella) vaccine. The children were with their mother at a Phoenix Children’s Hospital clinic when they were exposed to measles. Frustrated and concerned, Dr. Jacks wrote a journal entry as though he was speaking directly to the person who was responsible for putting his family at risk. The next day, Kid Nurse reprinted the story and Dr. Jacks and his wife were soon being interviewed by various national news outlets, including Fox News and CNN.

As a Vaccinate Your Family Champion, Dr. Jacks, a Board Certified Pediatrician and a Fellow of the American Academy of Pediatrics, gave us permission to share his story. Dr. Jacks also presented testimony in front of the U.S. Senate Health, Education, Labor and Pensions Committee on The Reemergence of Vaccine-Preventable Disease: Exploring the Public Health Successes and Challenges on February 10, 2015.  We hope that his personal experiences helped educate the public and Congress about the plight of those who depend on community immunity (also known as “herd immunity”) and the importance of protecting those who are most vulnerable to vaccine-preventable diseases.

DrJacksAndFamily

Following is Dr. Jacks message from CaringBridge:

To the parent of the unvaccinated child who exposed my family to measles,

I have a number of strong feelings surging through my body right now. Towards my family, I am feeling extra protective like a papa bear. Towards you, unvaccinating parent, I feel anger and frustration at your choices.

By now we’ve all heard of the measles outbreak that originated in Disneyland. Or more accurately, originated from an unvaccinated person that infected other similarly minded vacationers. I won’t get into a debate about the whole anti-vaccine movement, the thimerosol controversy (no longer even used in childhood vaccines), or the myth that MMR causes autism (there are changes in autistic brain chemistry prior to birth).

Let’s talk measles for just a minute. It once was widespread in the US. It is now considered ‘eliminated’ in the US (not continually circulating in the population—only contracted through travel out of country). Measles is highly contagious (>90 percent infectious) and can survive airborne in a room and infect someone two hours later. Another fun fact is that measles is transmittable before it can be diagnosed—four days before the characteristic rash appears. “Measles itself is unpleasant, but the complications are dangerous. Six to 20 percent of the people who get the disease will get an ear infection, diarrhea, or even pneumonia. One out of 1000 people with measles will develop inflammation of the brain, and about one out of 1000 will die.” That sounds fun!

Okay. Calm down, self.

I assume you love your child just like I love mine. I assume that you are trying to make good choices regarding their care. Please realize that your child does not live in a bubble. When your child gets sick, other children are exposed. My children. Why would you knowingly expose anyone to your sick, unvaccinated child after recently visiting Disneyland? That was a boneheaded move.  Why does this affect me and mine? Why is my family at risk if we are vaccinating? I’m glad you asked.

Eli was not yet old enough to begin his measles, mumps, rubella shots

Regarding measles, there are four groups of people. All are represented in my family.

First, the MMR vaccine results in immunity for most who receive it. Two doses provides protection that can be confirmed with blood titers. My wife is in this group.

Second, about 3 percent of fully vaccinated children do not develop a lasting immune response. They have low blood titers and are not protected against measles. If exposed, this group will likely get the illness. I am in this group. I was thankfully not exposed.

Third, we have the unvaccinated. My son, Eli, is 10 months old. He is too young to received the MMR vaccine and thus has no protection. Whether by refusal or because they are too young, exposed unvaccinated children have a 90 percent chance of getting measles.

Fourth, there are children like my Maggie. These are children who can’t be vaccinated. Children who have cancer. Children who are immunocompromised. Maggie before being diagnosed with cancer. Children who are truly allergic to a vaccine or part of a vaccine (i.e anaphylaxis to egg). These children remain at risk. They cannot be protected, except by vaccinating people around them.

Maggie was diagnosed last August with ALL—acute lymphoblastic leukemia (blood cancer). She has had multiple rounds of chemotherapy, lumbar punctures, and surgery to implant her port. She has been admitted six times since diagnosis and spent over three weeks at Phoenix Children’s Hospital (including Halloween and New Years). She had been immunized fully, but we are unable to immunize her further until after treatments end.  Her treatment will prayerfully end shortly after her 5th birthday, in January 2017.

Here is how the measles outbreak has further complicated our situation.

Maggie waits to get her measles immune globulin.

Maggie waits to get her measles immune globulin

It was a Wednesday. Maggie had just been discharged from Phoenix Children’s Hospital after finishing her latest round of chemotherapy. That afternoon she went to the PCH East Valley Specialty Clinic for a lab draw. Everything went fine, and we were feeling good…until Sunday evening when we got the call. On Wednesday afternoon, Anna, Maggie, and Eli had been exposed to measles by another patient. Our two kids lacked the immunity to defend against measles. The only protection available was multiple shots of rubeola immune globulin (measles antibodies). There were three shots for Maggie and two shots for Eli. They screamed, but they now have some temporary protection against measles. We pray it is enough.

Since Eli was exposed to measles but is unvaccinated, he had to received multiple shots of measles antibodies to try to keep him well.

Eli and Maggie were exposed to measles on January 21. Despite the treatment noted, they could start showing signs of measles any time from now through February 11 (21 days post exposure). After a new blood test, both my wife and I were found to be immune to measles, but the children will remain in isolation until February 11.

Unvaccinating parent, thanks for screwing up our three-week “vacation” from chemotherapy. Instead of a break, we get to watch for measles symptoms and pray for no fevers (or back to the hospital we go). Thanks for making us cancel our trip to the snow this year. Maggie really wanted to see snow, but we will not risk exposing anyone else. On that note, thanks for exposing 195 children to an illness considered ‘eliminated’ from the US. Your poor choices don’t just effect your child. They affect my family and many more like us.

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